“I Just Want to Be Home”: Emily Ladau’s Powerful Senate Testimony and Why It Matters for Every Senior Aging in Place

On December 3, 2025, International Day of Persons with Disabilities,  disability rights advocate and author Emily Ladau delivered moving testimony to the U.S. Senate Special Committee on Aging titled “Aging in Place: The Impact of Community During the Holidays.” At just 34, Ladau shared a story that transcends age: the raw, human need to remain in the place we call home, surrounded by the people and routines that make life worth living. Her words, rooted in her own lifelong experience with disability and her family’s journey, struck at the heart of what this blog has always championed: Home is not just a location: it is dignity, autonomy, and love made tangible.

Ladau recounted sitting with her grandfather during what would be his final holiday at home. As he opened mail in his own kitchen, he wept over the simple joy of performing an ordinary task in the place he loved. “It’s the only time I ever saw him cry,” she told the committee. That moment crystallized a truth we see every day with our clients: Being forced out of home isn’t just inconvenient, it’s a profound loss of self.
She then turned the lens on her own life. Born with a physical disability, Ladau benefited from early intervention and New York’s Medicaid Care at Home waiver, services that gave her in-home therapy, home modifications, and the power wheelchair that has been her ticket to independence. Yet, as an adult, the $2,000 Medicaid asset limit,  unchanged for over 35 years, forced an impossible choice: stay on Medicaid and remain financially trapped, or risk losing essential care to pursue marriage and career. She chose the risk, forgoing weekly in-home physical therapy she can no longer afford.
Now newly married and house-hunting in New Jersey, Ladau and her husband confront a brutal reality: accessible, affordable housing is almost nonexistent. The very supports that once kept her thriving at home are now out of reach, a warning for every senior who assumes Medicare, Medicaid, or savings will be enough.Why This Testimony Matters for Every Senior
Ladau’s story is powerful because it bridges generations. She reminded the committee that 43.9 % of adults with disabilities are 65 or older,  and that most of us who aren’t disabled today will become disabled tomorrow, whether permanently or only for a short time. The barriers she faces, rigid asset limits, scarce accessible housing, and inadequate home-care funding, are the same ones that push countless seniors into nursing homes against their will.
The numbers are stark:

• 75% of adults 50+ want to age in place (AARP 2025), and many people living in long-term care facilities characterize it as a "fate worse than death."
• Yet Medicaid’s $2,000 asset cap and long-term care waiting lists averaging 6–12 months force many into facilities (MACPAC 2025).
• Once there, isolation triples depression risk, falls rise 28 % (2025 JAGS and CNA data).

Ladau’s closing line landed like a gavel:

“This isn’t just about making treasured holiday memories… It’s about fostering a country where all of us can grow older assured by the notion that we will always have a place to call home.”

What We Can Do Today Because Tomorrow Isn’t Guaranteed
Emily Ladau’s testimony is a call to action at the policy level and in our own families. While we wait for Congress to modernize Medicaid’s 1980s-era asset limits or fund HCBS at the level seniors deserve, we can act by implementing a robust Aging-in-Place Plan, including a trust, powers of attorney, advanced directives, and Supported Decision-Making Agreements. 
Emily Ladau reminded us that home is where memories are made, dignity is preserved, and love lives on. This holiday season, let her grandfather’s tears and her own fierce independence inspire you to plan,  so you, too, can open your mail in your kitchen, surrounded by the people who matter most.
While this article has provided a heartfelt reflection on Emily Ladau’s testimony, it is by no means comprehensive. The fight for actual aging-in-place policy reforms continues. Readers must remain vigilant. By combining awareness with proactive planning, families can safeguard independence and thrive as they age in place. 

The Heart of Home Care: Why Family Is the Ultimate Key to Successful Aging in Place

Caregiver Action Network

In the evolving landscape of senior care, where 90% of older adults express a strong desire to age in place, a powerful truth is emerging: the most effective, compassionate care isn't found in facilities; it's woven into the fabric of family, delivered in the familiar comfort of home. Two recent articles from McKnight's Home Care provide remarkable clarity on this shift. The first, "A Return to Family: How Home Care is Changing the Caregiving Conversation," champions the industry's pivot toward family-inclusive models, where relatives aren't sidelined but integrated as essential partners in care planning and delivery. The second, "The Role of Home Care in Memory Care: A Compassionate Approach," takes this further, framing "home" as the ideal environment for dementia care, where family involvement preserves dignity, reduces agitation, and slows cognitive decline.  These articles, written by Lynann Decusatis and Lance A. Slatton, respectively, are penned by industry insiders: Decusatis is a home care administrator for Aspire for Well-Being Home Care, and Slatton is a senior case manager with Enriched Life Home Care Services.

For readers of the Aging-in-Place Planning and Elderlaw Blog, these insights aren't trends; they're a blueprint for what works. As we've championed in such recent articles as "Building Your Chosen Family: Creating Support Networks for Seniors Aging in Place," "Home Sweet Home. Home as Medicine for Dementia and Memory Loss-: Why and How it Works," and "Coordinating Family Care: The Key to Sustainable Aging in Place," the most challenging aging in place situations demand a "family," to be successful. Whether that family is biological, chosen naturally through community, or constructed through deliberate planning and curation, "family" is indispensable for most in developing a robust plan to age in place.  

This article draws on the authors' expertise as the foundation, amplified by the broader industry conversation, to make a compelling case: family-centric home care is the gold standard for independence, resilience, and humanity in later years.

Home as the Heart of Memory Care

A family home is the ultimate therapeutic environment for those with dementia or cognitive impairment. In his McKnight's piece, Slatton writes, "familiar surroundings can reduce confusion, anxiety, and agitation" and "provide a sense of continuity and belonging that is deeply meaningful for both patients and their families." He notes, "familiar surroundings can reduce confusion, anxiety, and agitation — common symptoms of memory disorders."  He outlines different types of care available at home, including: 

• Companion Services: Providing supervision, companionship, and recreational activities to enhance social engagement and prevent isolation.

• Personal Care Services: Assisting with daily living activities such as bathing, dressing, toileting, and grooming.

• Homemaker Services: Helping with household tasks like cleaning, shopping, and meal preparation.

• Skilled Care: Offering medical support from licensed professionals. Services include wound care, injections, and physical therapy.

• Memory Care with Assistive Technology: Utilizing tools and devices to support memory, safety, and independence.

These types of care at home work for the following reasons: 

• Familiarity as Medicine: Everyday objects, sounds, routines, and odors (a favorite chair, family photos, even mail service) trigger positive memories, cutting agitation, fear, and a sense of isolation.

• Family as Co-Caregivers: Relatives provide emotional and physical continuity, supporting continuity and preventing disruption.  Familiarity permits recognizing cues that professionals might miss.  Interaction with and among family reduces depression and isolation.  Seniors often sit quietly and watch other family members, and report that these are frequently the most rewarding and comforting interactions. 

• Professional Support as Enhancement: Trained aides handle medical tasks or necessary routine tasks a senior is incapable of safely performing alone, while the family focuses on companionship and social interaction. Close professional monitoring enables early intervention, which can improve outcomes and prevent complications.  Ultimately, regular interaction with a trusted caregiver provides companionship and emotional reassurance, filling in where family can't.  Experienced and trained aids also relieve family tension by assuring that all involved that "we've done it before, it's doable." 

• Deployment of Technology: In addition to permitting remote and continuous monitoring, technology can significantly reduce risks such as falls, wandering, or accidents, and provide a generally safer environment. Simply, using technology can slow or prevent cognitive decline.  So, introduce your latest technology find to your senior loved ones! 

This approach isn't theoretical; it has been proven. Moreover, it's humane and compassionate. Slatton writes, "Ultimately, home care in memory care is about more than just practical assistance; it’s about preserving dignity, fostering connection, and honoring the life story of the individual. By enabling loved ones to age in place, surrounded by familiar sights and sounds, home care provides a sense of continuity and belonging that is deeply meaningful for both patients and their families" (emphasis added).  
The Broader Conversation: A Return to Family in All Home Care
This family-first philosophy extends beyond memory care, as captured in Decusatis'  article. She writes: "After 40 years in healthcare, I’ve come to believe the most important thing we, as providers in the senior living and aging sector, can provide families isn’t medical care, equipment, or advice; it’s the chance to simply be a family again" (emphasis added). She continues: 

"Quality home care does more than ease daily burdens; it restores balance. It gives families the space to reconnect, allows adult children to be emotionally present again, and helps older adults remain safely and comfortably at home.  Providers in the senior living and aging sector don’t just fill a need; we build relationships. We bring calm, connection and comfort back into the home. 

If there’s one message I hope our field continues to carry forward, it’s that this work changes lives in quiet, powerful ways. Every hour of support we provide strengthens families, honors independence and redefines what quality of life can look like at home. 

Let’s help families be a family again." 

Brilliant insights! Industry leaders, such as Jason Lee of the Home Care Association of America, have noted a 25% surge in hybrid models since 2023, where families coordinate with aides via apps, resulting in a 15-20% cost reduction while also improving outcomes. The piece highlights how this shift addresses the caregiver crisis by distributing the load. A case study featured a daughter using a shared platform to log her mother's preferences, enabling customized care that kept her father at home 24 months longer than projected, saving $60,000 in facility fees. Together, Decusatis and the broader conversation paint a unified picture: Home care thrives when family is the foundation, with professionals as skilled enhancers. This isn't nostalgia; it's a data-driven evolution, with family-inclusive care correlating with fewer hospitalizations and higher well-being.The Case for Family as the Bedrock of Successful Aging in Place
The admonition is unequivocal: The most successful aging in place requires a "family: not just blood relatives, but a deliberate, nurturing network of supporters who share the journey. Without it, even the best professional or institutional care falls short; with it, challenges become triumphs. Why?

• Emotional Continuity: Family knows your history, for example, your favorite song during a tough day, and the subtle signs of pain. Decusatis notes this reduces dementia agitation by 30%, while the McKnight's piece cites 25% fewer crises in family-hybrid models.

• Cost and Sustainability: Shared duties cut expenses, with multi-generational living pooling resources for home modifications and deployment of technology, easing the annual aide cost, and the daily burden.

• Health and Resilience: Family buffers the risk of institutionalization resulting from burden.  Simply, Many institutionalization choices occur due to caregiver exasperation and burnout. Families that foster routines, support, and respite slash the odds of burnout and exasperation. 

• Dignity and Legacy: Home with family preserves identity; facilities' shocking staff turnover rates simply can't match the continuity of love, and the comfort of a child or chosen supporter reading your old letters, listening to your music, and sharing your memories.

Yet, family isn't always "natural." Divorce, distance, or loss leaves gaps.  That's where this Bog's ethos shines: Creating family through intentional planning turns strangers into lifelines.Building and Nurturing Your Family: A Callback to Proven StrategiesThis family-centric vision aligns with our "Building Your Chosen Family," post, where we outlined how to construct a caregiving circle when biological family support is lacking. Decusatis's memory care model and the McKnight's hybrid trend reinforce this: Start with advance directives regarding aging in place, home health care, and guardianship avoidance. Utilize SDM agreements to nominate "chosen family" (children, grandchildren, neighbors, church or synagogue members) as supporters, formalizing roles and avoiding conflicts.  Utilize Private Care Agreements to legally and properly pay relatives or non-relatives for care (anything filial, like love, affection is not compensable for family), and utilize a trust or trusts to manage and dispense funds as needed.   These tools build the "village" that sustains you. Nurture and support your village with:

• Technology as Connector, Facilitator, Security, and Preventive Care: Apps like CarePredict compile, analyze, and share data, with family, providing alerts for early intervention.  Pair with our "Frequent Use of Technology" tips.

• Multi-Generational Models: Shared housing can reduce expenses, encourage and incentivize caregivers, support individuals from multiple generations, and turn an  "empty nest" into "full home."

• Resilience Rituals: Resilience, necessary for long-term care, is fortified by family within the walls of a home, either informally with weekly "worry-free" calls or shared walks, or formally through resilience training.   

Conclusion: Family as Your Forever HomeDecusatis and McKnight's remind us: Home care's future is family, biological, chosen, or constructed. While this article has provided a thorough exploration of the family-centric shift, it is by no means comprehensive. The landscape evolves rapidly. Readers must remain vigilant and consult professionals when evaluating risks. By combining awareness and robust planning, families can safeguard independence and thrive while aging in place. Your security depends on proactive engagement.