Thursday, April 6, 2017

Summit County Probate Court Conducts Clothing Drive for Indigent Seniors

The Summit County Probate Court is seeking gently used clothing for indigent wards of the court in long-term care facilities.  The Probate Court will collect gently used, clean clothing from April 17 through May 19 during  court hours.

Probate Court Judge Elinore Marsh Stormer said in a news release reported by the Akron Beacon Journal
“The Probate Court is guardian over nearly 900 indigent senior wards in Summit County. Some of our wards enter nursing homes without a decent change of clothes and no funds to buy clothing. Since it’s time to go through our closets, please consider helping some of our most vulnerable citizens.
The court is seeking to follow up on its successful holiday clothing drive when more than 1,000 pieces of clothing were collected and distributed.  All donations are welcome with a special need for larger sizes. Donated clothing will be distributed to seniors residing in nursing homes in the area who need these very basic items.

“We will accept any clothing such as coats, sweaters, jackets, shirts, pants, gloves/mittens, hats and scarves, socks, slippers, et cetera,” said Mary Ann Freedman, community outreach coordinator for the court. “Items can be dropped off to the Human Services Department, located in the basement level of the court house.”

The Probate Court, at 209 S. High Street in Akron, is open 8 a.m. to 4 p.m. Monday through Friday.
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For more information, contact Mary Ann Freedman, community outreach coordinator at 330-643-2332 or Lisa Mansfield, community outreach specialist at 330-643-7346.

Wednesday, April 5, 2017

"SICK, DYING AND RAPED IN AMERICA'S NURSING HOMES" - CNN Exposes Sexual Abuse in Long Term Care Institutions

Nursing home residents are among the nation's most vulnerable.  Many suffer from illness, disabilities, Alzheimer’s or dementia,  mobility limitations, and speech or hearing impairments.  They are often weak, fragile, and unable to defend themselves. A CNN investigative report has exposed  that, rather than protecting these vulnerable seniors, many long term care facilities expose them to sexual assault, abuse, and rape.  Worse, the abusers are often protected by the facilities, regulators, and legal systems. Although elder sexual abuse can occur anywhere, it ragically occurs most often in nursing homes.

In the explosive exposé, the first installment of which is entitled "Sick, Dying, and Raped in America's Nursing Homes," CNN reported  “this little-discussed issue is more widespread than anyone would imagine. Even more disturbing, in many cases, nursing homes and the government officials who oversee them are doing little -- or nothing -- to stop it.” 

More specifically, “more than 16,000 complaints of sexual abuse have been reported since 2000 in long-term care facilities.” This number wholly fails to reflect the  true extent of the problem because it includes “only those cases in which state long-term care ombudsmen (who act as advocates for facility residents) were somehow involved in resolving the complaints.”  As might be expected, ombudsmen are only rarely involved in such incidents, and as a result, the statistic only serves to illustrate a far greater underlying problem.  

Regardless, whatever statistics or surveys one is able to ferret from which to create data, sexual abuse in nursing homes and other long term care institutions is vastly under-reported.  According to a report prepared by the  National Research Council, “a vast reservoir of undetected and unreported elder mistreatment in nursing homes" exist precisely because the population is vulnerable.  "Because nursing home residents as a class are both extremely physically vulnerable and generally unable either to protect themselves or report elder mistreatment they experience, the physical and emotional costs of elder mistreatment in such environments are likely to be very high."

Further frustrating appreciation of the problem is wanton concealment by the industry.   CNN  found, “the federal government has cited more than 1,000 nursing homes for mishandling or failing to prevent alleged cases of rape, sexual assault and sexual abuse at their facilities during this period...[a]nd nearly 100 of these facilities have been cited multiple times during the same period.”  CNN interviewed family members who believed their loved ones were being violated as well as nursing home employees who claim to be forced from their jobs for disclosing sexual abuse suspicions. They also spoke to advocates for the elderly and to industry insiders who agreed that immediate change is needed in regard to how alleged sexual abuse reports are handled.

Shockingly, the federal and state regulatory agencies make identification of even reported cases difficult, because, despite the frequency and extent of the problem:
"Despite the litany of abuses detailed in government reports, there is no comprehensive, national data on how many cases of sexual abuse have been reported in facilities housing the elderly."
State health investigators examine all types of abuse reported at nursing homes and assisted living facilities, whether reported by the facilities or flagged by complaints to the state from witnesses, family members or victims. In the case of nursing homes, state officials typically conduct these investigations, as well as routine inspections, on behalf of the federal Centers for Medicare & Medicaid Services (CMS), which regulates the more than 15,000 facilities that receive government reimbursements that pay for many residents' care. Both state health agencies and the federal government then use the information to rate facilities and issue financial penalties for the worst offenders.

CNN surveyed the health departments and other agencies that oversee long-term care facilities in all 50 states. Of the states that could provide at least some data, the responses varied widely.   Wisconsin, for example, reported it didn't have a single substantiated report of abuse in the last five years!  Worse than the unbelievable, is that most states were wholly unable to say how frequently abuse investigations involved sexual allegations, often stating that sex abuse allegations are not categorized separately from other forms of abuse.

The federal government doesn't specifically track all sexual allegations either. CMS lumps sexual allegations into a category that includes all kinds of abuse, such as physical or financial. CMS told CNN that it did not segregate sexual abuse because it takes all forms of abuse seriously.  It is unclear whether CNN asked CMS why, then, it tracks some incidents, rather than others?  When asked by CNN, the agency conducted a specialized search using sex-related keywords, but because not every case was sexual in nature, CNN had to review each case individually to filter out any irrelevant citations.

According to CNN, "the reports show that 226 nursing homes have been cited for failing to protect residents from instances in which sexual abuse was substantiated between 2010 and 2015." Of these cases, "around 60% resulted in fines, which totaled more than $9 million -- though only 16 facilities were permanently cut off from Medicare and Medicaid funding."  Because the federal government only regulates nursing homes, CNN's analysis did not include assisted living facilities.

In the installment entitled, "Six Women. Three Nursing Homes. And the Man Accused of Rape and Abuse," CNN followed the trail of a nursing aide who was a serial sexual offender, and despite having demonstrated an obvious and discoverable pattern of sexual abuse and rape, was able to move from one facility to another.   With a history of sexual abuse allegations, the aid continued to find employment in the nursing home profession.   CNN found that nursing home officials are quick to dismiss a resident’s sexual abuse claims as "hallucinations" or "fantasies."  CNN also discovered that state labor laws often protected abusers, and discouraged administrators from properly disciplining serial abusers.  

Although women are, by far, the most common victims of sexual abuse in long term care institutions, men, too, are often victimized. Sexual abuse of older men in nursing homes crosses traditional gender, cultural, and role boundaries for both victims and perpetrators.

Worse, although most offenders are "loners," who commit their abuse secretly and alone, CNN discovered a frightening number of examples in which abusers conspire to commit sexual abuse of the most vulnerable, spurred in part by a form of dehumanizing "mob mentality:"  
For months, a group of male nursing aides at a California facility abused and humiliated five male residents -- taking videos and photos to share with other staff members. One victim, a 56-year-old with cerebral palsy, was paraded around naked. Another, an elderly man with paralysis who struggled to speak was pinched on his nipples and penis and forced to eat feces out of his adult diapers. He was terrified his abusers would kill him. While the aides lost their certifications, an investigation by Disability Rights California found that many of them never faced charges.
Another group of nursing aides, teenagers in Albert Lea, Minnesota, tormented at least 15 male and female residents, many of whom suffered from Alzheimer's. The female aides struck, poked and rubbed the residents and touched their breasts. They inserted their fingers into one resident's rectum. They rubbed the residents' crotches and laughed. One aide pulled down her own pants and sat on a female resident's lap -- humping and groping her. "I was basically appalled by the callous disregard for human decency," a judge later said. Two of the abusers, who were 18 at the time and convicted of disorderly conduct by a caregiver, served 42 days in jail. The other teens were tried in juvenile court and faced no jail time at all. (emphasis added).
Detection of the crime can be difficult, if not impossible.  Residents often are unable to complain or report details of attacks.  Physical evidence is often scant.  Even when combined with strangulation, which is occurs in as many as one quarter (25%) of reported sexual assault cases, there may be no obvious physical signs or marks of the assault.  Strangulation requires less pressure than the pressure of an average handshake; it is possible to strangle a person to death and leave no  marks or signs.  

The psychological and emotional trauma is too easily ignored when exhibited by the elderly.  Sexual assault can cause  anxiety, depression, suicidal thoughts, PTSD, memory loss, and when combined with strangulation or use of force, even stroke. Victims may have lost consciousness during the assault,  and may have trouble recalling details of the sexual assault. They may also be embarrassed by some of their symptoms, such as urinary or fecal incontinence.  These effects are often attributable to other causes or conditions suffered by the elderly.  Sadly, CNN found that workers often lacked specific training needed to spot sexual abuse -- keeping reports of abuse from ever reaching authorities.

Certainly, many nursing home employees promptly report abusers to authorities as required by federal law and assist in the investigations. But in numerous examples of abuse uncovered by CNN, the facilities themselves made it possible for violent rapes and sexual assaults to go unchecked, unreported, and poorly or incompetently investigated.  Allegations are routinely questioned or dismissed because victims have cognitive conditions such as Alzheimer's.  According to CNN, "the reputation and safety of the facility may take priority: There's often a fear that bringing investigators into a cash-strapped facility may expose other issues, threaten a nursing home with closure or open the door to costly lawsuits."

CNN reported on one such case:
When the chef at an assisted living facility, was arrested in Louisiana last year in the alleged rape of a 78-year-old resident, a director at the facility, Julie Henry, was quick to issue an emotional statement to local media -- claiming the company was "shocked and disheartened." But not long after, Henry was arrested, accused of orchestrating an elaborate cover-up of the abuse. According to police, she had tried to prevent an investigation by instructing staff not to report the incident. She asked employees at the assisted living facility, Beau Provence Memory Care, to hand over all evidence to her, which she then allegedly destroyed. The chef, Jerry Kan, was indicted on a first first-degree rape charge and has pleaded not guilty. The case is ongoing and his attorney declined to comment.  
CNN reported that at the time of publication, "Henry has not been indicted."

The National Association of Health Care Assistants responded with a pledge to act. They stated its members are “saddened and sickened by the CNN investigative report” and planned to increase training and education within its membership. They said this includes ensuring that nursing assistants know how to identify warning signs of potential abuse and the proper mechanism for reporting it to higher authorities.

AMDA – The Society for Post-Acute and Long-Term Care Medicine, also responded:
AMDA emphatically condemns any type of abuse of post-acute and long-term care (PALTC) residents, and stands by its mission to promote and enhance the development of competent, compassionate, and committed medical practitioners and leaders to provide the highest quality, goal-centered care to patients and residents across all PALTC settings.
Adequate education, training, and leadership is vital to ensuring the safety, comfort, and quality of life of PALTC residents and patients. For 40 years, the Society has worked to:
  • Train practitioners to identify and report elder abuse – Society educational programs including the Annual Conference, and the Core Curriculum on Medical Direction in PALTC provide education on residents’ rights, elder mistreatment, and more.
  • Train practitioners to provide high-quality care to all patients, and to be aware and able to properly deal with issues made more complicated when treating patients with cognitive impairments. Sexual activity among residents in PALTC settings is a challenging topic for all parties. The Society continues to work on educational and policy initiatives to protect and better care for patients with cognitive impairments.
The Society believes that it is vitally important to provide patient-centered care in all circumstances, to all patients, listening to and investigating all complaints, concerns, and other comments by patients and family members. The Society will continue to train health care practitioners, advocate for them, their patients and family members, and educate the public, to advance its mission: A world in which all PALTC patients and residents receive the highest-quality, compassionate care for optimum health, function, and quality of life.
Legislative solutions are often proposed, but provide a mix of possible solutions.  On one hand, the State of Missouri is taking measures to allow hidden cameras within nursing homes to catch offenders. Other legislation, however, is aimed at making it much harder to take legal and punitive action against nursing homes that have a problematic past.

Iowa is considering legislation aimed at limiting the legal liability of nursing homes as well as doctors and facilities in the medical industry, in order to cut health care costs affected by huge lawsuit amounts.  Advocates for nursing home abuse victims are strongly opposed to such legislation, but they also often oppose on worker and resident privacy grounds remedial efforts, such as cameras.  . Some suggest that without the threat of litigation, nursing home companies are free to operate without accountability, notwithstanding that large lawsuit recoveries don't appear to be effective currently in creating accountability.  

Looking for legislative solutions, however, is likely a fools errand.  The problem is not new. As a 2003 National Academies Press Report lamented: 
We are not the first to lament the poor state of knowledge about elder mistreatment. In 1986, a consensus conference of leading researchers (including two of our panel members) was convened at the University of New Hampshire to point the way toward advancing knowledge. The conclusions and recommendations reached at that conference are strikingly similar to those appearing in this report. (emphasis added).
The best solution to institutional care risks remains avoiding institutional care.  "Aging in Place" should be a significant discreet objective of your estate and financial plan. 

Tuesday, April 4, 2017

Facial Injuries in Nursing Homes Underappreciated and Contribute Significantly to Healthcare Costs

A recent study illustrates yet another reason that consumers should plan to "Age in Place," and avoid unnecessary and avoidable institutional care.  The incidence of facial injuries suffered by nursing home residents may be underappreciated and therefore missing from coordinated efforts to prevent the injuries resulting in “substantial amount of costs” to the U.S. healthcare system, the  recent study suggests.

A research team from Wayne State University in Michigan conducted the first-ever population-based analysis of facial trauma in the skilled nursing setting, with the goal of shedding light on the “significant clinical issue.”  “Because [facial trauma] has been largely neglected in the literature, characterization of facial injury patterns among the elderly population, including the extent to which this affects our health care system, may be exceedingly invaluable,” the study's authors wrote.

Analysis of data from the National Electronic Injury Surveillance System found that nearly 110,000 nursing home residents required emergency department care for facial trauma between 2011 and 2015. While residents in their 60s had relatively equal facial injury rates, the number of injuries increased with age for female residents.

The most common facial injury among nursing home residents were lacerations and other soft-tissue injuries, such as contusions or hematomas. The study estimated that nearly 3,000 facial fractures occurred in skilled nursing residents each year.

The analysis discovered that 22.7% of facial fractures occurred as a resident was transferring in and out of bed, suggesting an area of targeted interventions from providers, healthcare researchers and policymakers.

Results of the study were published last Thursday in JAMA Otolaryngology - Head & Neck Surgery.

Saturday, April 1, 2017

Aging In Place- Pre-hospice Care Helps Patients Stay Home

Among the growing number of tools and resources aiding consumers to "age in place" is "pre-hospice." Kaiser Health News recently published an encouraging article, Pre-Hospice" Saves Money By Keeping People At Home Near The End Of Life, that well explains the concept and its promise. 

The article first discusses the practical impediments consumers face in an effort to age in place:
"Most aging people would choose to stay home in their last years of life. But for many, it doesn’t work out: They go in and out of hospitals, getting treated for flare-ups of various chronic illnesses. It’s a massive problem that costs the health care system billions of dollars and has galvanized health providers, hospital administrators and policymakers to search for solutions."
According to the article, Sharp HealthCare, a San Diego health system, devised the pre-hospice program called Transitions as a way to fulfill patients' desire to stay home, keep them out of the hospital, provide necessary care in their home, and reduce the costs of care. Social workers and nurses from Sharp regularly visit patients in their homes to explain what they can expect in their final years, help them make end-of-life plans, and teach them how to better manage their conditions, illnesses, and diseases. Physicians track their health, and eliminate unnecessary medications and treatments.  Unlike hospice care, patients don’t need to have a prognosis of six months or less to live, and they receiving curative treatment for their illnesses - not just relief from symptoms.

Transitions was among the first of its kind, but now there are several such "home-based palliative care" programs around the country. They are part of a broader push to improve people’s health and reduce spending through better coordination of care and more treatment outside of hospitals. Palliative care focuses on relieving patients’ stress and pain as their health declines, and aims to maintain quality of life. For people with serious illnesses, such as cancer, dementia, and pulmonary and heart failure, the plan is to provide patients palliative care and then transition naturally to hospice care when necessary.  The 2014 report “Dying in America,” by the Institute of Medicine, recommended that all people with serious advanced illness have access to palliative care. 

Transitions is one of the many good ideas that has come from Kaiser Permanente. Nearly 20 years ago, Kaiser created a home-based palliative care program in California and later in Hawaii and Colorado. Studies by Kaiser and others found that participants were far more likely to be satisfied with their care and more likely to die at home than those not in the program. One of the studies found that 36 percent of people receiving palliative care at home were hospitalized in their final months of life, compared with 59 percent of those getting standard care. The overall cost of care for those who participated in the program was a third less than for those who didn’t. A more recent study confirms these conclusions. 

The article also discusses that although the need for such services is increasing, "not enough trained providers are available. And some doctors are unfamiliar with the approach, and patients may be reluctant, especially those who haven’t clearly been told they have a terminal diagnosis." 

Of course hanging over ever the entire health care industry is what becomes of the Affordable Care Act.  The Affordable Care Act  established new rules and pilot programs that reward the quality rather than the quantity of care, such as “accountable care organizations,” networks of doctors and hospitals that share responsibility for providing care to patients. These organizations also share the savings when they rein in unnecessary spending by keeping people healthier. Innovations such as these are helping to make pre-hospice and home-based palliative care a more viable option.

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